Rodearni’s operation for her cleft deformity was in 2015 however she is experiencing more difficulties than just suffering from cleft lip and palate. We have discovered that she is also suffering from a syndrome called kabuki. This can affect her hearing and she will also need to have lots of physiotherapy as she has very weak limbs. The Children of Sumatra do everything they can to make sure every child we help can receive all the care they need. With the help of Harapan Jaya we have arranged the best treatment for Rodeari’s wellbeing and she now undergoes physiotherapy 3 times a week at the centre. Already we have seen an amazing improvement and everyday Rodeari gets stronger. Sometimes it is not just a simple cleft operation that is needed to help the children we find and therefore we always do what we can to support the whole child and all their needs.
